Tuesday, July 24, 2007

2 steps forward, 1 step backward.

As you can see, Maryam is back on oxygen. Don't be too sad though, we never really expected her to come home on room air. It would be nice, but not expected at all! Her average oxygen saturation during her 12 hour trace was 94%. The docs want her to be between 96%-100% to stay on room air. So, they started another trace at 1pm at 125 mils per minute, or 1/8 of a liter. If she does well enough on this trace, they'll do another 12 hour trace tomorrow at 50mils per minute.

She has discovered her syringe!! Maryam keeps pulling her legs up and trying to kick it or pull it with her feet! Its cute, but dangerous!!! We've been trying to tie her legs down with her blankets because if she pulls it out, she'll be back in surgery again. It makes her happy to play, so we're just careful to make sure that she doesn't actually pull it out.

Her feedings are going REALLY well. Today her feedings started at 75 mils (2 1/2 ounces) every 3 hours and she took them all down in about 6 or 7 minutes. Tonight they increased them to 90 mils (3 ounces) every 4 hours and then we'll be working up to 110 mils (just over 3 1/2 ounces) in increments of 5 mils per feeding, every 4 hours. The goal is for her to get to 120 mils (4 ounces) every 4 hours. Wish her luck!!! Her tummy will need to do lots of stretching and her lungs probably won't have the endurance, but that's what the feeding tube is for!! All in all, today was a GREAT day for her. She's very happy and her tummy is finally full! Don't get me wrong, she was kicking and screaming when her nurse tried to put that cannula back on her! She was not going down without a fight!!! She is known around the nursery as being one of the biggest fighters they've ever seen! But its for her own good and one day, she'll understand that. But seriously, isn't she freakin' adorable?

PS. Congratulations to my cousin Anna on "learning a little bit about the computer!" We've been reading everyone's comments and we think they're GREAT! We really do have an amazing family!

And speaking of family, we have VERY EXCITING NEWS!!! Sarah and Scott are expecting their daughter Charlie Mae Haston via C-Section tomorrow at noon! Have them in your prayers! (I'm sure I'll have pictures of her on here tomorrow!)

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Anonymous said...

How is everyone doing this morning? GREAT I HOPE!!! We wish Maryam ALL THE LUCK IN THE WORLD. She is such a happy baby. I love all her pictures. Tell Sarah we send our best. We will be waiting to see pictures.Take care. Kiss the baby for us. Anna

Anonymous said...

We are leaving town for a few days so you won't see any comments from me. But, that doesn't mean I am not thinking about Maryam & praying for her! I'll get updates from my mom, you know she's getting good on the computer thing! So glad everything is going well! Hugs & kisses to baby Maryam. Be sure to tell Sarah that we are thinking & praying for them too! So exciting! Maryam has another cousin! Take care! Julie & the boys

Anonymous said...

Yes, Maryam is the cutest! Glad to hear all is well with her, in time as she grows, hopefully her lungs will become stronger! She looks like she just loves all the attention. Well it is 11AM on Wednesday and thinking of Sarah and Scott getting ready for their big moment. Can't wait to see pictures. Anna is doing a great job and hope Julie and her family have a good vacation. Give Maryam a hug and kiss from us, always, Marietta & Ken

Anonymous said...

Love the new screen saver on my phone of Maryam. Thanks for sending me the picture. Love you guys, Mayda and boys.