Maryam eating her breakfast....note the the tray is empty of any and all Cheetos!! Hooray! She ate 12 at Breakfast today!
So, now for the news that I've been dreading writing about. You probably read the blog entry on Wednesday about having to take Maryam to see her GI doc. He wanted to examine her to help us figure out why her Mic-Key button was causing her so much pain. As soon as he touched it he figured out what the problem was and it turns out the only solution is another surgery. Apparently the way her torso grew it caused her Mic-Key button track to hit a rib on the inside of her stomach cavity. He said its very painful and compared it to being "constantly kicked in the shin". He also said that this is "bad news". He said he's seen this before and the only solution is to make a new hole and track lower in the stomach. This is awful. This surgery is going to set her back so much....months if not years. She's come so far with her oral aversion and sensory issues, having another surgery is the last thing she needs. As he said it all I could think of was every worst case scenario out there.....riding the vent, staph infections, physiological damage, and taking HUGE steps backward in her oral progress. He is right, its definitely BAD NEWS. I didn't want to bum anyone out by writing it on the blog before Christmas. Its all so emotionally draining. How much does Maryam have to go through? How much do Brett and I have to go through as parents? I know it can be worse, trust me, no one knows that as much as we do, but that doesn't make any of this any easier. Just try to keep her in your prayers. Thanks. And I'm REALLY sorry if I bummed anyone out. I'm having a hard time staying positive right now.
We are Jennifer and Brett, mommy and Daddy to Maryam, the former 25w 2d micropreemie and blessing sent from heaven. We started this blog about Maryam to help save time and keep our families and friends updated on our little miracle baby. Its been really fun sharing her day to day progress and we've been getting loads of wonderful feedback. Thanks to all of you for checking up on her. We know that everyone's lives are busy, we love that you all take the time to see how she's doing. Thank you for your thoughts and prayers.