We went to San Diego yesterday evening to see Maryam's pediatric pulmonologist. We LOVE him, however yesterday Maryam did not. As soon as he walked in Maryam got nervous and scared. It was strange. She's seen many doctors in her life and this was the most nervous and scared I've ever seen her and he wasn't even wearing a white coat.
He was happy to see that Maryam is off of the O2 during the day and is anxious to try to get her off at night. He prescribed an antihistamine to see if that will help her with her restless sleep, the darkness under her eyes, and the dried up snot on her nose every time she wakes from sleep. He wants us to give her the new med at night with her last feeding and spot check her at least twice during the night to be sure she's sating above 90%. He says she should sat between 90%-92% and he thinks she can do that on room air. after 7-10 days he wants an email letting him know if she passed or not. Hooray! How rad would that be? So tonight we start a new test! This is a test I'm VERY happy about!
He also confirmed that she qualifies for the synagis shot again this year! I'm so glad of this. He said she meets all the standards: under 2 when RSV season starts and was receiving pulmonary therapy within 6 months of the season starting. So, basically if she had been taken off the O2 before May 1 she wouldn't qualify, but because it was in July she does! w00t!