Daddy bought Maryam a new bikini that has a matching hat! Too cute not to post.
Maryam is getting even more comfortable in the pool. Tonight she didn't want to go in her floaty at all. She just wanted to play on the stairs, jump into my arms and hang on the side of the pool, that is when she wasn't being thrown in the air, dunked under water or pulled around by her hands. She's too independent if you ask me! I tried a new feeding technique today. It failed. I thought that if maybe I tube fed her less than her normal amount that it might cause her to eat more.....wrong! I made some carnation instant breakfast, which if you've tasted it before you know is SUPER tasty, thinking its almost the same nutritional content of the Pediasure but tastes better! I was thinking if she would get hungry or thirsty I'd present the Carnation, well, I presented and she didn't like it one bit! I think she thought I was tricking her, but I wasn't. I did put the drink in her Backyardigans cup which usually has water in it, but I didn't tell her I was giving her water! Usually she says "wa-wa" or "dink" when she wants water. I told her, "here is a drink, but its not water, its something new called Carnation, its SUPER Yummy! Watch, I'll have some too!" I took a drink then gave it to her, she took a drink and gave me the stink eye. It was terrible! She was so mad at me! So then the rest of the day it was nearly impossible to get her to drink water because she probably thought I was still trying to give her the Carnation. I'm so frustrated! I don't know what's worse, knowing she CAN swallow some things but chooses not to or thinking that she can't swallow anything at all. I'm sure some of you are thinking, "just don't tube feed her, then she'll have to drink or eat something!" You're right she'd have to live, but she doesn't know that. She doesn't associate being hungry with putting food into her mouth and swallowing. She has NO idea that one has anything to do with the other. And she gags and retches so much when anything gets near going down her throat that she freaks out at the idea of swallowing anything and gags and retches more. Its a terrible cycle. I will admit that she has gotten MUCH better at actually putting food into her mouth. She'll put pretty much any food in her mouth and she likes most of it too! She just can't swallow it! We have found an alternative to Cheetos brand Cheese Puffs, now we're giving her the Gerber brand of the toddler foods. They're pretty much the same thing, only they dissolve much faster so she doesn't have as much time to spit them out. I personally have seen her take 4 independent bites that have not come back out....SHE SWALLOWED THEM! It took LOTS of distraction and it has only happened 4 times, but its definitely a start and definitely a step in the right direction. I just wish eating wasn't so hard for her. It's clearly frustrating for her. It's scary for her. It's uncomfortable for her. Eating is the most unpleasant thing she has to do. I am grateful that she has taken a greater interest in it and seems to be trying, I just wish she had an easier go at it.
We are Jennifer and Brett, mommy and Daddy to Maryam, the former 25w 2d micropreemie and blessing sent from heaven. We started this blog about Maryam to help save time and keep our families and friends updated on our little miracle baby. Its been really fun sharing her day to day progress and we've been getting loads of wonderful feedback. Thanks to all of you for checking up on her. We know that everyone's lives are busy, we love that you all take the time to see how she's doing. Thank you for your thoughts and prayers.