How GREAT is this? Tomorrow will celebrate the 4th week of Maryam being off of oxygen during the day time. And LOOK! Hooray! She's sating at 97%! Her bpm's are high, but they always are, so don't be concerned. We get concerned when she goes over 205 for more than 5 minutes, which she hasn't since we've had the pulse oximeter at home. Now, for the super cool news, Maryam has been off of most of her meds for 4 days! She still has the inhaled steroid, which SHE HATES, but we notice a significant difference in her breathing on days where she falls asleep before we have a chance to give it to her.
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