Saturday, May 2, 2009

Happy National Scrapbooking Day!!!!

I thought I'd share the first 3 pages of Maryam's CHOC scrapbook with you all. The first picture is the first page of the book. The second picture is the two page spread of our stay at the RMH. The 3rd and 4th pictures are the individual pages. ENJOY!

Maryam has been motoring right along with drinking the Pediasure. She's still averaging about 2 ounces every 4 ounces. I know that doesn't sound like much, but its HUGE for her!!!! I think, from now on, I'm going to say she's 75% tube fed instead of 100% tube fed. Because really, she's taking over 25% of her daily calories orally now. How amazing is that? I think its pretty darn cool.

Unfortunately this morning Maryam woke up with another bald spot. So, now she has a bald spot on top of her head and another one on the back of her head. I think tonight after she goes to sleep I'm going to put socks on her hands so she can't use her fingers as well to grasp her hair. Last night she actually started crying in her sleep and I think now its from her pulling her own hair. When I went in to check on her she didn't have her hands on her head and there wasn't enough light for me to notice that she had pulled her hair out. Bummer.

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1 comment:

Leanne said...

I love the pages! Good luck with the next few weeks! Don't forget to take care of yourself. I hope the socks on her hands work, too.